Making Waves

Often I quote Andre Guide when I want to embark into uncharted waters or I get an unruly wild hair growing out of my ass I need to quiet.  My quote of his is “One cannot discover new lands without consenting to lose sight of shore for a very long time.”  The quote has been changed so many times that I am not sure what the actual one Mr. Guide actually quoted but I am sure it was just as effective as I keep going back year after year and using it.  Anyhow, yesterday I started working on the website for my project.

Camera phone photo taken at 4:30 am….

I settled on that one because it was the first shoot I did with my friend Angel and when I was very ill.  It was in October of 2017 and I had been sick for almost two months and had lost about 35 to 40 pounds at that point. The pain was unbearable but Angel would come hang out and make me laugh.  If I had a goof ball idea she didn’t hesitate to get dressed up and try it out, even if she was in pain too.  We hoped and dreamed a lot during that time.  I remember being thankful that she was there as no one was around and I was so far from Los Angeles and my nearest friends and family.  I wasn’t broadcasting everything on social media for the world at that point.

_DSC0080 your pain is whowing
This portrait taken in 2017 is aptly titled “Your Pain is Showing” as she was having severe neck pain and this is where the name of the project comes from.

Small steps and big dreams, right? Now to finish building.  Hopefully, I can find others that will open up and share their stories and art forms.  Right now, the focus is to:

  • Raise awareness and support to Effects of Pain and Pain Related Illnesses – Mind & Body
  • To feature one to two artists per month or their caregivers.  The featured artist or artists will have front page coverage to feature their story and gallery to showcase their work or music or whatever media it is they choose
  • Opportunity to sell your art and donate portions of the proceeds or all to the charity of your choice

Also, this project seems to be bigger than me and I will need help.  I have to admit, I am in pain and can’t do everything like I used to.  Yesterday at physical therapy, my therapist reminded me that I need to rest when I asked him why my legs felt like lead weights and I had much more pain lately.  He said I had been doing too much and needed to rest.

I have reached out to one person and am waiting to hear back. Oh and this needs to be a 501(c) yes, I am not looking to make money off of others pain or my own. The charity that I am working toward is the Cauda Equina Foundation.  Technically, I am disabled, so this will be a little rough going.  I want to find voices for our pain, we need to be heard, seen and felt and believed.  So often, we are overlooked because pain is sometimes invisible.  So, if there are any willing volunteers we can work by Skype or Dropbox.  The wonders of science.  Who would have thought that now we don’t even have to be in the same room to collaborate anymore.  Cool, right?  Who knows, this might just turn out to be another pipe dream.  I hope not, as I think it could do good for people and for me.  Who knows?



Above that was hubby four years ago, right on cue Facebook, thank you for your invention.   This was about 2 months after his surgery for colon cancer.  So thankful that he pushed through his pain and I remember video taping him only a week after he came home while he played guitar in our lving room and he sang a little.  A friend of ours just posted on FB that music heals.  It seems to be a common theme.

To my Cauda Equina Syndrome people, I just ordered this after I stopped laughing. I can’t wait to get it in the mail!  For years I used joke around because I fell a lot and would say “I am really not drunk just gravity challenged.” Now I really do have a valid reason!  Hey, if you can’t laugh at your self sometimes…


Have a fabulous Saturday where ever in the world you are.  May it be restful sweet.  Thanks for stopping by and hope to see you around these parts again.


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